Statement of Principles concerning sickle-cell disease No. 109 of 1995

Administered by Department of Veterans' Affairs

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Instrument No.109 of 1995

 

 

Statement of Principles

concerning

SICKLE-CELL DISEASE

ICD CODE: 282.6

Veterans’ Entitlements Act 1986
subsection 196B(2)

1. Being of the view that there is sound medical-scientific evidence that indicates that sickle-cell disease and death from sickle-cell disease can be related to operational service rendered by veterans, peacekeeping service rendered by members of Peacekeeping forces and hazardous service rendered by members of the Forces, the Repatriation Medical Authority determines, under subsection 196B(2) of the Veterans’ Entitlements Act 1986, that the factor that must as a minimum exist before it can be said that a reasonable hypothesis has been raised connecting sickle-cell disease or death from sickle-cell disease with the circumstances of that service, is:

 

(a) the inability to obtain appropriate clinical management for sickle-cell disease.

 

2. Subject to clause 3 (below) the factor set out in paragraph 1(a) must be related to any service rendered by a person.

 

3. The factor set out in paragraph 1(a) applies only where:

 

(a) the person’s sickle-cell disease was contracted prior to a period, or part of a period, of service to which the factor is related; and

 

(b) the relationship suggested between the sickle-cell disease and the particular service of a person is a relationship set out in paragraph 8(1)(e), 9(1)(e), 70(5)(d), or 70(5A)(d) of the Act.

 

4. For the purposes of this Statement of Principles:

 

“ICD code” means a number assigned to a particular kind of injury or disease in the tenth edition of the International Classification of Diseases 9th Revision, effective date of 1 October 1993, copyrighted by the US Commission on Professional and Hospital Activities, and having the Library of Congress number 77-94472;

 

“sickle-cell disease” means an hereditary haematological condition, attracting ICD code 282.6, whereby, on deoxygenation, red blood cells containing the haemoglobin Hb S change from bi-concave disk shaped cells to crescent or "sickle" shaped cells.

 

 

 

Dated this  Eighth day of  March 1995

 

 

The Common Seal of the    )

Repatriation Medical Authority   )

was affixed to this instrument  )

in the presence of:    )

 

 

KEN DONALD

CHAIRMAN

Overview

The Veterans' Entitlements Act 1986 was enacted to provide entitlements and benefits to veterans who have contracted diseases or injuries as a result of their service. In 1995, the Repatriation Medical Authority issued a Statement of Principles concerning sickle-cell disease to address the problem of linking this hereditary haematological condition to the service rendered by veterans, peacekeeping forces, and the Australian Defence Force. The policy objective was to establish a reasonable hypothesis connecting sickle-cell disease or death from sickle-cell disease with the service circumstances when the veteran was unable to obtain appropriate clinical management for the disease. This Statement of Principles was made under the authority of the Repatriation Medical Authority, which determined the minimum factor required to establish such a connection, ensuring that the disease contracted before or during the service could be related to the service rendered.

Scope and Application

The Veterans' Entitlements Act 1986 establishes the legislative framework within which the Statement of Principles concerning sickle-cell disease applies, offering guidance on the connection between sickle-cell disease, death from the condition, and certain forms of service. This Act applies to veterans, members of peacekeeping forces, and members of the Australian Defence Force, focusing specifically on those who may have been exposed to circumstances that could potentially relate to the onset or exacerbation of sickle-cell disease. The legislation applies nationally across Australia, as it falls under Commonwealth jurisdiction. The Statement of Principles explicitly states that the inability to obtain appropriate clinical management for sickle-cell disease must be related to the service rendered by the individual to establish a reasonable hypothesis linking the disease to their service. This principle is confined to situations where the disease was contracted prior to the service period in question and where the relationship between the disease and the service falls within specific categories outlined in the Act. The Act does not specify exclusions or exemptions but instead provides criteria that must be met to establish the connection. The scope of application may be extended or restricted through subordinate instruments, ensuring that the legislation remains responsive to evolving medical and scientific understandings of sickle-cell disease.

Key Provisions

The main operative sections of the Statement of Principles concerning Sickle-Cell Disease (1995) under the Veterans’ Entitlements Act 1986, specifically section 196B(2), establish a connection between sickle-cell disease or death from sickle-cell disease and certain types of service rendered by veterans, peacekeeping forces, or the military. The primary requirement is that a reasonable hypothesis must be raised linking sickle-cell disease or death from it to operational, peacekeeping, or hazardous service (section 1). To meet this requirement, there must be evidence of the inability to obtain appropriate clinical management for sickle-cell disease related to the service in question (section 1(a)). This factor must pertain to the service rendered by the individual, unless specified otherwise (section 2). The relationship must also satisfy the criteria outlined in specific subsections of the Act (sections 8(1)(e), 9(1)(e), 70(5)(d), and 70(5A)(d)) (section 3). Furthermore, the individual must have contracted sickle-cell disease prior to the relevant period of service (section 3(a)), and the disease must be an hereditary haematological condition with an ICD code of 282.6 (section 4). The Statement of Principles imposes several obligations on the parties involved. Firstly, it requires that any claim linking sickle-cell disease or death from it to service must be substantiated with evidence of the inability to obtain appropriate clinical management for the disease (section 1(a)). This evidence must be directly related to the service in question (section 2). Secondly, the claimant must demonstrate that the sickle-cell disease was contracted before the relevant period of service (section 3(a)). Additionally, the relationship between the disease and the service must comply with the criteria outlined in the Act (section 3). Finally, the claimant must ensure that the disease in question meets the definition provided in the Statement of Principles, specifically being an hereditary haematological condition with an ICD code of 282.6 (section 4). Failure to comply with the provisions of the Statement of Principles may result in various consequences. While the Statement of Principles itself does not explicitly outline specific penalties, breaches of the Veterans’ Entitlements Act 1986 or related legislation may lead to civil or criminal consequences. Under Australian law, misrepresentation or fraud in claims related to veterans’ entitlements can result in civil penalties, including fines and restitution, as well as criminal charges. For instance, providing false information to obtain veterans' benefits may constitute an offence under the Crimes Act 1914, potentially leading to imprisonment. The exact penalties would depend on the specific breach and the relevant legislation, but the potential consequences can be significant, underscoring the importance of adhering to the requirements set out in the Statement of Principles.

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