Statement of Principles concerning Creutzfeldt-Jakob disease No. 34 of 2004

Administered by Department of Veterans' Affairs

Legislation au F2005B02526 Not in force Legislative Instrument

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Instrument No. 34 of 2004

 

Revocation

of

Statement of Principles

concerning

 

JAKOB-CREUTZFELDT DISEASE

 

and

 

Determination

of

Statement of Principles

concerning

 

CREUTZFELDT-JAKOB DISEASE

 

for the purposes of the

 

Veterans’ Entitlements Act 1986

and

Military Rehabilitation and Compensation Act 2004

 

1. The Repatriation Medical Authority under subsection 196B(2) and (8) of the Veterans’ Entitlements Act 1986 (the VEA):

 

(a) revokes Instrument No. 63 of 1995, as amended by Instrument No. 49 of 1997; and

 

(b) determines in their place the following Statement of Principles.

 

Kind of injury, disease or death

2. (a) This Statement of Principles is about Creutzfeldt-Jakob disease and death from Creutzfeldt-Jakob disease.

 

(b)              For the purposes of this Statement of Principles, “Creutzfeldt-Jakob disease” also known as “CJD” and “Jakob-Creutzfeldt disease” means a spongiform encephalopathy, existing in sporadic, familial, and transmissible forms, associated with abnormal prion protein accumulation. This definition also includes variant Creutzfeldt-Jakob disease.

(c)               Creutzfeldt-Jakob disease attracts ICD-10-AM code A81.0.

(d)              In the application of this Statement of Principles, the definition of “Creutzfeldt-Jakob disease” is that given at paragraph 2(b) above.

 

Basis for determining the factors

3. The Repatriation Medical Authority is of the view that there is sound medical-scientific evidence that indicates that Creutzfeldt-Jakob disease and death from Creutzfeldt-Jakob disease can be related to relevant service rendered by veterans, members of Peacekeeping Forces, or members of the Forces under the VEA, or members under the Military Rehabilitation and Compensation Act 2004 (the MRCA).

 

Factors that must be related to service

4. At least one of the factors set out in clause 5 must be related to the relevant service rendered by the person.

 

Factors

5. The factor that must as a minimum exist before it can be said that a reasonable hypothesis has been raised connecting Creutzfeldt-Jakob disease or death from Creutzfeldt-Jakob disease with the circumstances of a person’s relevant service is:

 

(a)               undergoing a course of treatment with human pituitary growth hormone before the clinical onset of Creutzfeldt-Jakob disease; or

 

(b)              undergoing a course of treatment with human pituitary gonadotrophins before the clinical onset of Creutzfeldt-Jakob disease; or

 

(c)               undergoing surgery before the clinical onset of Creutzfeldt-Jakob disease; or

 

(d)              undergoing a dura mater graft before the clinical onset of Creutzfeldt-Jakob disease; or

 

(e)               having been treated with blood or blood products before the clinical onset of Creutzfeldt-Jakob disease; or

 

(f)                for variant Creutzfeldt-Jakob disease only, consuming beef or a beef product from an area reported in a peer reviewed medical or scientific publication to have bovine spongiform encephalopathy infection in cattle, before the clinical onset of Creutzfeldt-Jakob disease.

 

Inclusion of Statements of Principles

6. In this Statement of Principles if a relevant factor applies and that factor includes an injury or disease in respect of which there is a Statement of Principles then the factors in that last mentioned Statement of Principles apply in accordance with the terms of that Statement of Principles.

 

Other definitions

7. For the purposes of this Statement of Principles:

 

“a dura mater graft” means a surgical procedure where a dura mater graft from a human donor is used;

 

“blood products” means material extracted from human blood;

 

“bovine spongiform encephalopathy infection” also known as “mad cow disease”, means a disease of cattle caused by consumption of prion-contaminated meat and bone meal;

 

“death from Creutzfeldt-Jakob disease” in relation to a person includes death from a terminal event or condition that was contributed to by the person’s Creutzfeldt-Jakob disease;

 

“ICD-10-AM code” means a number assigned to a particular kind of injury or disease in The International Statistical Classification of Diseases and Related Health Problems, 10th revision, Australian Modification (ICD-10-AM), Fourth Edition, effective date of 1 July 2004, copyrighted by the National Centre for Classification in Health, Sydney, NSW, and having ISBN 1 86487 594 1;

 

“relevant service” means:

(a) operational service under the VEA; or

(b) peacekeeping service under the VEA; or

(c)               hazardous service under the VEA; or

(d)              warlike service under the MRCA; or

(e)               non-warlike service under the MRCA;

 

“terminal event” means the proximate or ultimate cause of death and includes:

(a) pneumonia;

(b) respiratory failure;

(c) cardiac arrest;

(d) circulatory failure; or

(f)                cessation of brain function.

 

Application

8. This Instrument applies to all matters to which section 120A of the VEA or section 338 of the MRCA applies.

 

Dated this seventh day of  October  2004

 

 

The Common Seal of the    )

Repatriation Medical Authority   )

was affixed to this instrument  )

in the presence of:    )

 

KEN DONALD

CHAIRMAN

 

 

Overview

The Legislative Instrument No. 34 of 2004, enacted in 2004, addresses the revocation of the Statement of Principles concerning Jakob-Creutzfeldt Disease and the determination of a new Statement of Principles concerning Creutzfeldt-Jakob Disease, specifically for the purposes of the Veterans’ Entitlements Act 1986 and the Military Rehabilitation and Compensation Act 2004. This instrument was issued by the Repatriation Medical Authority under subsection 196B(2) and (8) of the Veterans’ Entitlements Act 1986. The objective is to provide a clear and updated framework for recognising and compensating veterans and members of peacekeeping or military forces who have been affected by Creutzfeldt-Jakob Disease, ensuring that the medical-scientific evidence aligns with the current understanding of the disease and its potential links to service-related factors. This legislative instrument aims to streamline the recognition process for those affected by this rare and debilitating condition.

Scope and Application

The Repatriation Medical Authority, under the Veterans’ Entitlements Act 1986 and the Military Rehabilitation and Compensation Act 2004, revokes the previous Statement of Principles concerning Jakob-Creutzfeldt Disease and determines a new Statement of Principles concerning Creutzfeldt-Jakob Disease. This legislative instrument applies to all matters where section 120A of the Veterans’ Entitlements Act or section 338 of the Military Rehabilitation and Compensation Act is relevant, and it specifically addresses the eligibility of veterans, members of Peacekeeping Forces, and members of the Australian Defence Force for compensation related to Creutzfeldt-Jakob Disease. The new Statement of Principles defines Creutzfeldt-Jakob Disease, including its various forms and related ICD-10-AM code, and outlines the medical-scientific basis for connecting this disease to relevant military service. The instrument also specifies the factors that must be related to the service to establish a reasonable hypothesis of a service connection, such as treatment with certain hormones, surgeries, grafts, blood products, or consumption of beef from regions with bovine spongiform encephalopathy infection for variant Creutzfeldt-Jakob Disease. Additionally, it clarifies that other applicable Statements of Principles are incorporated where relevant, and provides definitions for terms used within the Statement of Principles.

Key Provisions

The key provisions of this legislative instrument, numbered 34 of 2004, focus on the revocation of a previous Statement of Principles concerning Jakob-Creutzfeldt disease and the determination of a new Statement of Principles concerning Creutzfeldt-Jakob disease. Under section 1, the Repatriation Medical Authority, operating under subsection 196B(2) and (8) of the Veterans’ Entitlements Act 1986 (VEA), revokes Instrument No. 63 of 1995, as amended by Instrument No. 49 of 1997, and determines a new Statement of Principles concerning Creutzfeldt-Jakob disease. The new Statement of Principles, detailed in section 2, defines Creutzfeldt-Jakob disease, also known as CJD and Jakob-Creutzfeldt disease, as a spongiform encephalopathy associated with abnormal prion protein accumulation, attracting ICD-10-AM code A81.0. The determination in section 3 is based on sound medical-scientific evidence indicating a potential relationship between Creutzfeldt-Jakob disease, death from Creutzfeldt-Jakob disease, and relevant service rendered by veterans, members of Peacekeeping Forces, or members of the Forces under the VEA, or members under the Military Rehabilitation and Compensation Act 2004 (MRCA). The obligations and requirements imposed by the Act on the parties or entities it governs include ensuring that at least one of the factors set out in section 5 must be related to the relevant service rendered by the person. These factors include undergoing treatment with human pituitary growth hormone, human pituitary gonadotrophins, surgery, or a dura mater graft before the clinical onset of Creutzfeldt-Jakob disease, being treated with blood or blood products, or, specifically for variant Creutzfeldt-Jakob disease, consuming beef or a beef product from an area with bovine spongiform encephalopathy infection in cattle. Section 6 further explains that if a relevant factor applies and includes an injury or disease in respect of which there is a Statement of Principles, then the factors in that last mentioned Statement of Principles apply in accordance with the terms of that Statement of Principles. Other definitions provided in section 7 clarify terms such as “dura mater graft,” “blood products,” “bovine spongiform encephalopathy infection,” “death from Creutzfeldt-Jakob disease,” “ICD-10-AM code,” “relevant service,” and “terminal event.” The legislative instrument, effective from the date of its issuance, applies to all matters to which section 120A of the VEA or section 338 of the MRCA applies, as detailed in section 8. While the instrument does not explicitly mention offences, penalties, or civil/criminal consequences for breach, the legal framework under which it operates, including the VEA and MRCA, likely incorporates provisions for such consequences. Under Australian law, breaches of legislative instruments related to veterans’ entitlements and military rehabilitation can result in penalties that vary depending on the severity and nature of the breach, potentially including fines and imprisonment for serious violations.

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