Statement of Principles concerning autosomal dominant polycystic kidney disease No. 39 of 2015

Administered by Department of Veterans' Affairs

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REPATRIATION MEDICAL AUTHORITY

 

INSTRUMENT NO. 39 of 2015

 

VETERANS’ ENTITLEMENTS ACT 1986

MILITARY REHABILITATION AND COMPENSATION ACT 2004

 

EXPLANATORY NOTES FOR TABLING

 

 

  1. The Repatriation Medical Authority (the Authority), under subsection 196B(8) of the Veterans' Entitlements Act 1986 (the VEA), revokes Instrument No. 55 of 2007, determined under subsection 196B(2) of the VEA concerning autosomal dominant polycystic kidney disease.
  2. The Authority is of the view that there is sound medical-scientific evidence that indicates that autosomal dominant polycystic kidney disease and death from autosomal dominant polycystic kidney disease can be related to particular kinds of service.  The Authority has therefore determined pursuant to subsection 196B(2) of the VEA a Statement of Principles, Instrument No. 39 of 2015 concerning autosomal dominant polycystic kidney disease.  This Instrument will in effect replace the revoked Statement of Principles.
  3. The provisions of the Military Rehabilitation and Compensation Act 2004 (the MRCA) relating to claims for compensation commenced on 1 July 2004.  Claims under section 319 of the MRCA for acceptance of liability for a service injury sustained, a service disease contracted or service death on or after 1 July 2004 are determined by the Military Rehabilitation and Compensation Commission by reference to Statements of Principles issued by the Authority pursuant to the VEA.
  4. The Statement of Principles sets out the factors that must as a minimum exist, and which of those factors must be related to the following kinds of service rendered by a person:

 operational service under the VEA;

 peacekeeping service under the VEA;

 hazardous service under the VEA;

 British nuclear test defence service under the VEA;

 warlike service under the MRCA;

 non-warlike service under the MRCA,

before it can be said that a reasonable hypothesis has been raised connecting autosomal dominant polycystic kidney disease or death from autosomal dominant polycystic kidney disease, with the circumstances of that service.

5.             This Instrument results from an investigation notified by the Authority in the Government Notices Gazette of 31 October 2012 concerning autosomal dominant polycystic kidney disease in accordance with section 196G of the VEA.  The investigation involved an examination of the sound medical-scientific evidence now available to the Authority, including the sound medical-scientific evidence it has previously considered.

6.             The contents of this Instrument are in similar terms as the revoked Instrument.  Comparing this Instrument and the revoked Instrument, the differences include:

  • revising the definition of 'autosomal dominant polycystic kidney disease' in clause 3;
  • revising the definitions of 'ICD-10-AM code' and 'relevant service' in clause 6; and
  • specifying a date of effect for the Instrument in clause 8.

7.             Further changes to the format of the Instrument reflect the commencement of the MRCA and clarify that pursuant to subsection 196B(3A) of the VEA, the Statement of Principles has been determined for the purposes of both the VEA and the MRCA.

8.             Prior to determining this Instrument, the Authority advertised its intention to undertake an investigation in relation to autosomal dominant polycystic kidney disease in the Government Notices Gazette of 31 October 2012, and circulated a copy of the notice of intention to investigate to a wide range of organisations representing veterans, service personnel and their dependants.  The Authority invited submissions from the Repatriation Commission, organisations and persons referred to in section 196E of the VEA, and any person having expertise in the field.  No submissions were received for consideration by the Authority during the investigation.

9.             This instrument is compatible with the Human Rights and Freedoms recognised or declared in the International Instruments listed in Section 3 of the Human Rights (Parliamentary Scrutiny) Act 2011. A Statement of Compatibility with Human Rights follows.

10.         The determining of this Instrument finalises the investigation in relation to autosomal dominant polycystic kidney disease as advertised in the Government Notices Gazette of 31 October 2012.

11.         A list of references relating to the above condition is available to any person or organisation referred to in subsection 196E(1)(a) to (c) of the VEA.  Any such request must be made in writing to the Repatriation Medical Authority at the following address:

The Registrar

Repatriation Medical Authority

GPO Box 1014

BRISBANE    QLD    4001

Statement of Compatibility with Human Rights

(Prepared in accordance with Part 3 of the Human Rights (Parliamentary Scrutiny) Act 2011)

 

Instrument No.:   Statement of Principles No. 39 of 2015

Kind of Injury, Disease or Death: Autosomal dominant polycystic kidney disease

 

This Legislative Instrument is compatible with the human rights and freedoms recognised or declared in the international instruments listed in section 3 of the Human Rights (Parliamentary Scrutiny) Act 2011.

Overview of the Legislative Instrument

1. This Legislative Instrument is determined pursuant to subsection 196B(8) of the Veterans' Entitlements Act 1986 (the VEA) for the purposes of the VEA and the Military Rehabilitation and Compensation Act 2004 (the MRCA).

2. This Legislative Instrument:-

  • facilitates claimants in making, and the Repatriation Commission in assessing, claims under the VEA and the MRCA respectively, by specifying the circumstances in which medical treatment and compensation can be extended to eligible persons who have autosomal dominant polycystic kidney disease;
  • facilitates the review of such decisions by the Veterans' Review Board and the Administrative Appeals Tribunal;
  • outlines the factors which the current sound medical-scientific evidence indicates must as a minimum exist, before it can be said that a reasonable hypothesis has been raised, connecting autosomal dominant polycystic kidney disease with the circumstances of eligible service rendered by a person, as set out in clause 4 of the Explanatory Notes;
  • replaces Instrument No. 55 of 2007; and
  • reflects developments in the available sound medical-scientific evidence concerning autosomal dominant polycystic kidney disease which have occurred since that earlier instrument was determined. 

3. The Instrument is assessed as being a technical instrument which improves the medico-scientific quality of outcomes under the VEA and the MRCA. 

Human Rights Implications

4. This Legislative Instrument does not derogate from any human rights. It promotes the human rights of veterans, current and former Defence Force members as well as other persons such as their dependents, including:

  • the right to social security (Art 9, International Covenant on Economic, Social and Cultural Rights; Art 26, Convention on the Rights of the Child and Art 28, Convention on the Rights of Persons with Disabilities) by helping to ensure that the qualifying conditions for the benefit are 'reasonable, proportionate and transparent'[1];
  • the right to an adequate standard of living (Art 11, ICSECR; Art 27, CRC and Art 28, CRPD) by facilitating the assessment and determination of social security benefits;
  • the right to the enjoyment of the highest attainable standard of physical and mental health (Art 12, ICSECR and Art 25, CRPD), by facilitating the assessment and determination of compensation and benefits in relation to the treatment and rehabilitation of veterans and Defence Force members; and
  • the rights of persons with disabilities by facilitating the determination of claims relating to treatment and rehabilitation (Art 26, CRPD).

Conclusion

This Legislative Instrument is compatible with human rights as it does not derogate from and promotes a number of human rights.

 

Repatriation Medical Authority

 

 

 

 

 

[1] In General Comment No. 19 (The right to social security), the Committee on Economic, Social and Cultural Rights said (at paragraph 24) this to be one of the elements of ensuring accessibility to social security.

Overview

The Repatriation Medical Authority Instrument No. 39 of 2015, under the Veterans' Entitlements Act 1986 and the Military Rehabilitation and Compensation Act 2004, addresses the medical condition of autosomal dominant polycystic kidney disease by establishing a Statement of Principles. This instrument was enacted to respond to the medical-scientific evidence indicating a connection between this disease and specific types of military service. The Authority's goal is to provide clarity and facilitate claims for compensation related to this condition, ensuring that eligible service members can access appropriate medical treatment and benefits. The instrument replaces the previous Statement of Principles issued in 2007, reflecting updated medical evidence and aligning with the legislative framework established by the MRCA. The Authority's determination process involved reviewing sound medical-scientific evidence and soliciting submissions from relevant stakeholders, although none were received. This instrument is compatible with human rights, promoting the rights to social security, an adequate standard of living, and the highest attainable standard of physical and mental health for affected veterans and service members.

Scope and Application

The Repatriation Medical Authority (the Authority), under the Veterans' Entitlements Act 1986 (VEA) and the Military Rehabilitation and Compensation Act 2004 (MRCA), has determined Instrument No. 39 of 2015, concerning autosomal dominant polycystic kidney disease (ADPKD). This legislative instrument revokes the previous Instrument No. 55 of 2007, replacing it with updated medical-scientific evidence regarding ADPKD and its connection to particular kinds of service. The Statement of Principles set out in this Instrument outlines the minimum factors that must exist, related to specific service types, to establish a reasonable hypothesis connecting ADPKD or death from ADPKD with service circumstances. This applies to veterans, service personnel, and their dependents who have contracted the disease, or who have died from it, during or after their service, and who are seeking compensation or medical treatment. The instrument applies nationally across Australia, with the Authority determining the Statement of Principles for both the VEA and the MRCA. The instrument does not include any specific exclusions, exemptions, or thresholds but is compatible with human rights as it does not derogate from and promotes several human rights, including the right to social security, an adequate standard of living, and the highest attainable standard of physical and mental health. The Authority can extend or restrict the application of this instrument through subordinate instruments, if necessary.

Key Provisions

The main operative sections of the Repatriation Medical Authority Instrument No. 39 of 2015 (the Instrument) focus on the determination of a Statement of Principles concerning autosomal dominant polycystic kidney disease (ADPKD) under subsection 196B(2) of the Veterans' Entitlements Act 1986 (VEA). This Statement of Principles outlines the circumstances in which ADPKD can be related to specific types of military service, such as operational, peacekeeping, hazardous, British nuclear test defence, warlike, and non-warlike service. This determination replaces the previously revoked Instrument No. 55 of 2007, reflecting updated medical-scientific evidence. The Instrument also references the Military Rehabilitation and Compensation Act 2004 (MRCA) to facilitate claims for compensation for service injuries, diseases, or deaths occurring on or after 1 July 2004. The Act imposes several obligations and requirements on the parties it governs. The Repatriation Medical Authority (the Authority) must consider sound medical-scientific evidence when determining the Statement of Principles. The Authority is responsible for setting out the minimum factors that must exist to establish a connection between ADPKD and specific types of military service. Additionally, the Authority must advertise its intention to investigate and invite submissions from relevant stakeholders, including the Repatriation Commission, organisations, and individuals with expertise in the field. The Instrument also mandates that the Authority ensure compatibility with human rights and freedoms recognised or declared in international instruments, as outlined in the Human Rights (Parliamentary Scrutiny) Act 2011. The Instrument includes provisions for offences, penalties, or consequences for breach. While the specific penalties are not detailed in the explanatory notes, breaches of provisions under the VEA and MRCA may generally result in legal actions, including fines or imprisonment, depending on the severity and nature of the breach. The consequences of non-compliance with the Authority's determinations may include the denial of medical treatment or compensation benefits for eligible veterans and service personnel. The Authority's decisions can be reviewed by the Veterans' Review Board and the Administrative Appeals Tribunal, providing a mechanism for redress if claimants believe their rights have been unfairly impacted.

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