Statement of Principles concerning albinism (Reasonable Hypothesis) (No. 31 of 2023)

Administered by Department of Veterans' Affairs

Legislation au F2023L00497 In force Legislative Instrument

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EXPLANATORY STATEMENT

 

STATEMENT OF PRINCIPLES CONCERNING

ALBINISM

(REASONABLE HYPOTHESIS) (NO. 31 OF 2023)

 

VETERANS' ENTITLEMENTS ACT 1986

MILITARY REHABILITATION AND COMPENSATION ACT 2004

 

  1. This is the Explanatory Statement to the Statement of Principles concerning albinism (Reasonable Hypothesis) (No. 31 of 2023).

Background

2.             The Repatriation Medical Authority (the Authority), under subsection 196B(8) of the Veterans' Entitlements Act 1986 (the VEA), repeals Instrument No. 19 of 2015 (Federal Register of Legislation No. F2014L01823) determined under subsection 196B(2) of the VEA concerning albinism.

3.             The Authority is of the view that there is sound medical-scientific evidence that indicates that albinism and death from albinism can be related to particular kinds of service.  The Authority has therefore determined pursuant to subsection 196B(2) of the VEA a Statement of Principles concerning albinism (Reasonable Hypothesis) (No. 31 of 2023).  This Instrument will in effect replace the repealed Statement of Principles.

Purpose and Operation

4.             The Statement of Principles will be applied in determining claims under the VEA and the Military Rehabilitation and Compensation Act 2004 (the MRCA).

5.             The Statement of Principles sets out the factors that must as a minimum exist, and which of those factors must be related to the following kinds of service rendered by a person:

 operational service under the VEA;

 peacekeeping service under the VEA;

 hazardous service under the VEA;

 British nuclear test defence service under the VEA;

 warlike service under the MRCA;

 non-warlike service under the MRCA,

before it can be said that a reasonable hypothesis has been raised connecting albinism or death from albinism, with the circumstances of that service.  The Statement of Principles has been determined for the purposes of both the VEA and the MRCA.

6.             This Instrument results from an investigation notified by the Authority in the Government Notices Gazette of 10 May 2022 concerning albinism in accordance with section 196G of the VEA.  The investigation involved an examination of the sound medical-scientific evidence now available to the Authority, including the sound medical-scientific evidence it has previously considered.

7.             The contents of this Instrument are in similar terms as the repealed Instrument.  Comparing this Instrument and the repealed Instrument, the differences include:

  • adopting the latest revised Instrument format, which commenced in 2015;
  • specifying a day of commencement for the Instrument in section 2;
  • revising the definition of 'albinism' in subsection 7(2);
  • including ICD-10-AM codes for 'albinism' in subsection 7(3);
  • revising the reference to 'ICD-10-AM code' in subsection 7(4).

 

Consultation

8.             Prior to determining this Instrument, the Authority advertised its intention to undertake an investigation in relation to albinism in the Government Notices Gazette of 10 May 2022, and circulated a copy of the notice of intention to investigate to a wide range of organisations representing veterans, service personnel and their dependants.  The Authority invited submissions from the Repatriation Commission, the Military Rehabilitation and Compensation Commission, organisations and persons referred to in section 196E of the VEA, and any person having expertise in the field.  No submissions were received for consideration by the Authority in relation to the investigation.

Human Rights

9.             This instrument is compatible with the Human Rights and Freedoms recognised or declared in the International Instruments listed in Section 3 of the Human Rights (Parliamentary Scrutiny) Act 2011.  A Statement of Compatibility with Human Rights follows.

Finalisation of Investigation

10.         The determining of this Instrument finalises the investigation in relation to albinism as advertised in the Government Notices Gazette of 10 May 2022.

References

11.         A list of references relating to the above condition is available on the Authority's website at: www.rma.gov.au. Any other document referred to in this Statement of Principles is available on request to the Repatriation Medical Authority at the following address:

              

Email:    info@rma.gov.au

Post:      The Registrar

Repatriation Medical Authority

GPO Box 1014

BRISBANE    QLD    4001


Statement of Compatibility with Human Rights

(Prepared in accordance with Part 3 of the Human Rights (Parliamentary Scrutiny) Act 2011)

 

Instrument No.:   Statement of Principles No. 31 of 2023

Kind of Injury, Disease or Death: Albinism

 

This Legislative Instrument is compatible with the human rights and freedoms recognised or declared in the international instruments listed in section 3 of the Human Rights (Parliamentary Scrutiny) Act 2011.

Overview of the Legislative Instrument

1. This Legislative Instrument is determined pursuant to subsection 196B(2) of the Veterans' Entitlements Act 1986 (the VEA) for the purposes of the VEA and the Military Rehabilitation and Compensation Act 2004 (the MRCA).  Part XIA of the VEA requires the determination of these instruments outlining the factors connecting particular kinds of injury, disease or death with service such being determined solely on the available sound medical-scientific evidence.

2. This Legislative Instrument:-

  • facilitates claimants in making, and the Repatriation Commission and the Military Rehabilitation and Compensation Commission in assessing, claims under the VEA and the MRCA respectively, by specifying the circumstances in which medical treatment and compensation can be extended to eligible persons who have albinism;
  • facilitates the review of such decisions by the Veterans' Review Board and the Administrative Appeals Tribunal;
  • outlines the factors which the current sound medical-scientific evidence indicates must as a minimum exist, before it can be said that a reasonable hypothesis has been raised, connecting albinism with the circumstances of eligible service rendered by a person, as set out in clause 5 of the Explanatory Statement;
  • replaces Instrument No. 19 of 2015; and
  • reflects developments in the available sound medical-scientific evidence concerning albinism which have occurred since that earlier instrument was determined. 

3. The Instrument is assessed as being a technical instrument which improves the medico-scientific quality of outcomes under the VEA and the MRCA. 

Human Rights Implications

4. This Legislative Instrument does not derogate from any human rights. It promotes the human rights of veterans, current and former Defence Force members as well as other persons such as their dependents, including:

  • the right to social security (Art 9, International Covenant on Economic, Social and Cultural Rights; Art 26, Convention on the Rights of the Child and Art 28, Convention on the Rights of Persons with Disabilities) by helping to ensure that the qualifying conditions for the benefit are 'reasonable, proportionate and transparent'[1];
  • the right to an adequate standard of living (Art 11, ICESCR; Art 27, CRC and Art 28, CRPD) by facilitating the assessment and determination of social security benefits;
  • the right to the enjoyment of the highest attainable standard of physical and mental health (Art 12, ICESCR and Art 25, CRPD), by facilitating the assessment and determination of compensation and benefits in relation to the treatment and rehabilitation of veterans and Defence Force members;
  • the rights of persons with disabilities by facilitating the determination of claims relating to treatment and rehabilitation (Art 26, CRPD); and
  • ensuring that those rights "will be exercised without discrimination of any kind as to race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status" (Art 2, ICESCR).

Conclusion

This Legislative Instrument is compatible with human rights as it does not derogate from and promotes a number of human rights.

 

Repatriation Medical Authority

 

 

 

 

 

[1] In General Comment No. 19 (The right to social security), the Committee on Economic, Social and Cultural Rights said (at paragraph 24) this to be one of the elements of ensuring accessibility to social security.

Overview

The Statement of Principles concerning albinism (Reasonable Hypothesis) (No. 31 of 2023), enacted by the Repatriation Medical Authority under subsection 196B(2) of the Veterans' Entitlements Act 1986, aims to address the gap in the recognition of albinism as a condition potentially linked to certain military services. This legislative instrument replaces the previous Statement of Principles concerning albinism from 2015 and incorporates updated medical-scientific evidence to better inform claims under the Veterans' Entitlements Act 1986 and the Military Rehabilitation and Compensation Act 2004. The policy objective is to ensure that claims related to albinism in military personnel are assessed based on the most current evidence, facilitating appropriate compensation and rehabilitation for affected veterans. The instrument sets out the minimum factors that must exist for a reasonable hypothesis to be raised regarding the connection between albinism and specific military services, thereby guiding both claimants and the authorities in their respective roles. Human rights considerations are integral to the development of this instrument, as it is designed to be compatible with the human rights and freedoms recognised in international instruments, such as the International Covenant on Economic, Social and Cultural Rights and the Convention on the Rights of Persons with Disabilities. This compatibility ensures that the rights of veterans, current and former Defence Force members, and their dependents are upheld, including their right to social security, adequate living standards, and the highest attainable standard of health. The instrument promotes these rights without discrimination, reflecting a commitment to equitable treatment in the assessment and determination of benefits for individuals with albinism.

Scope and Application

The Statement of Principles concerning albinism (Reasonable Hypothesis) (No. 31 of 2023) applies to veterans, current and former members of the Defence Force, and other eligible persons who have albinism and seek compensation or medical treatment under the Veterans' Entitlements Act 1986 (VEA) and the Military Rehabilitation and Compensation Act 2004 (MRCA). This legislation is applicable across Australia, as it is a Commonwealth Act, thereby covering all states and territories. The Statement of Principles sets out the specific factors that must exist to raise a reasonable hypothesis connecting albinism to particular kinds of service, including operational, peacekeeping, hazardous, British nuclear test defence, warlike, and non-warlike service. This determination aims to facilitate claims and assessments by the Repatriation Commission and the Military Rehabilitation and Compensation Commission, as well as reviews by the Veterans' Review Board and the Administrative Appeals Tribunal. The Instrument does not exclude any particular groups or circumstances but is instead designed to ensure that claims are assessed fairly and in accordance with the latest medical-scientific evidence. Any changes or extensions to the application of this Act may be made through subordinate instruments, ensuring its adaptability to future medical and scientific developments.

Key Provisions

The main operative sections of the Statement of Principles concerning albinism (Reasonable Hypothesis) (No. 31 of 2023) include the factors that must exist for a reasonable hypothesis to be raised connecting albinism or death from albinism with particular kinds of service, as specified in section 5 of the Explanatory Statement. These factors must relate to operational service, peacekeeping service, hazardous service, British nuclear test defence service, warlike service, and non-warlike service, as outlined under the Veterans' Entitlements Act 1986 (VEA) and the Military Rehabilitation and Compensation Act 2004 (MRCA). The Statement of Principles is designed to assist in determining claims under these Acts by establishing the minimum requirements that must be met to link albinism to the service rendered by a person. The Act imposes specific obligations on the parties involved. The Repatriation Medical Authority (the Authority), under subsection 196B(2) of the VEA, must determine the Statement of Principles based on available sound medical-scientific evidence. This involves examining the evidence to establish the connection between albinism and the specified kinds of service. The Authority is also required to facilitate the assessment and determination of claims by claimants, and the review of decisions by the Veterans' Review Board and the Administrative Appeals Tribunal. Furthermore, the Authority must ensure that the Statement of Principles is compatible with human rights, as required by the Human Rights (Parliamentary Scrutiny) Act 2004. The legislation includes provisions for offences, penalties, or consequences for breach. However, the Explanatory Statement does not detail specific offences or penalties related to the breach of the Statement of Principles. Instead, it emphasises the compatibility of the Statement of Principles with human rights, stating that it does not derogate from any human rights and promotes several human rights, including the right to social security, an adequate standard of living, and the highest attainable standard of physical and mental health. The focus is on ensuring that the rights of veterans, current and former Defence Force members, and their dependents are protected and facilitated by the Statement of Principles. In conclusion, the Statement of Principles concerning albinism (Reasonable Hypothesis) (No. 31 of 2023) sets out the minimum factors that must be present to connect albinism with particular kinds of service, as required under the VEA and MRCA. It imposes obligations on the Repatriation Medical Authority to determine the Statement of Principles based on sound medical-scientific evidence and to facilitate claims and reviews. While specific penalties for breach are not detailed, the Statement of Principles is designed to be compatible with human rights, ensuring the protection and promotion of the rights of eligible persons.

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Sourced from the Federal Register of Legislation at 26 August 2026. For the latest information on Australian Government law please go to https://www.legislation.gov.au.