Statement of Principles concerning albinism (Balance of Probabilities) (No. 32 of 2023)

Administered by Department of Veterans' Affairs

Legislation au F2023L00498 In force Legislative Instrument

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EXPLANATORY STATEMENT

 

STATEMENT OF PRINCIPLES CONCERNING

ALBINISM

(BALANCE OF PROBABILITIES) (NO. 32 OF 2023)

 

VETERANS' ENTITLEMENTS ACT 1986

MILITARY REHABILITATION AND COMPENSATION ACT 2004

 

  1. This is the Explanatory Statement to the Statement of Principles concerning albinism (Balance of Probabilities) (No. 32 of 2023).

Background

2.             The Repatriation Medical Authority (the Authority), under subsection 196B(8) of the Veterans' Entitlements Act 1986 (the VEA), repeals Instrument No. 20 of 2015 (Federal Register of Legislation No. F2014L01825) determined under subsection 196B(3) of the VEA concerning albinism.

3.             The Authority is of the view that on the sound medical-scientific evidence available it is more probable than not that albinism and death from albinism can be related to particular kinds of service.  The Authority has therefore determined pursuant to subsection 196B(3) of the VEA a Statement of Principles concerning albinism (Balance of Probabilities) (No. 32 of 2023).  This Instrument will in effect replace the repealed Statement of Principles.

Purpose and Operation

4.             The Statement of Principles will be applied in determining claims under the VEA and the Military Rehabilitation and Compensation Act 2004 (the MRCA).

5.             The Statement of Principles sets out the factors that must exist, and which of those factors must be related to the following kinds of service rendered by a person:

 eligible war service (other than operational service) under the VEA;

 defence service (other than hazardous service and British nuclear test defence service) under the VEA;

 peacetime service under the MRCA,

before it can be said that, on the balance of probabilities, albinism or death from albinism is connected with the circumstances of that service.  The Statement of Principles has been determined for the purposes of both the VEA and the MRCA.

6.             This Instrument results from an investigation notified by the Authority in the Government Notices Gazette of 10 May 2022 concerning albinism in accordance with section 196G of the VEA.  The investigation involved an examination of the sound medical-scientific evidence now available to the Authority, including the sound medical-scientific evidence it has previously considered.

7.             The contents of this Instrument are in similar terms as the repealed Instrument.  Comparing this Instrument and the repealed Instrument, the differences include:

  • adopting the latest revised Instrument format, which commenced in 2015;
  • specifying a day of commencement for the Instrument in section 2;
  • revising the definition of 'albinism' in subsection 7(2);
  • including ICD-10-AM codes for 'albinism' in subsection 7(3);
  • revising the reference to 'ICD-10-AM code' in subsection 7(4);

 

Consultation

8.             Prior to determining this Instrument, the Authority advertised its intention to undertake an investigation in relation to albinism in the Government Notices Gazette of 10 May 2022, and circulated a copy of the notice of intention to investigate to a wide range of organisations representing veterans, service personnel and their dependants.  The Authority invited submissions from the Repatriation Commission, the Military Rehabilitation and Compensation Commission, organisations and persons referred to in section 196E of the VEA, and any person having expertise in the field.  No submissions were received for consideration by the Authority in relation to the investigation.

Human Rights

9.             This instrument is compatible with the Human Rights and Freedoms recognised or declared in the International Instruments listed in Section 3 of the Human Rights (Parliamentary Scrutiny) Act 2011.  A Statement of Compatibility with Human Rights follows.

Finalisation of Investigation

10.         The determining of this Instrument finalises the investigation in relation to albinism as advertised in the Government Notices Gazette of 10 May 2022.

References

11.         A list of references relating to the above condition is available on the Authority's website at: www.rma.gov.au. Any other document referred to in this Statement of Principles is available on request to the Repatriation Medical Authority at the following address:

              

Email:    info@rma.gov.au

Post:      The Registrar

Repatriation Medical Authority

GPO Box 1014

BRISBANE    QLD    4001


Statement of Compatibility with Human Rights

(Prepared in accordance with Part 3 of the Human Rights (Parliamentary Scrutiny) Act 2011)

 

Instrument No.:   Statement of Principles No. 32 of 2023

Kind of Injury, Disease or Death: Albinism

 

This Legislative Instrument is compatible with the human rights and freedoms recognised or declared in the international instruments listed in section 3 of the Human Rights (Parliamentary Scrutiny) Act 2011.

Overview of the Legislative Instrument

1. This Legislative Instrument is determined pursuant to subsection 196B(3) of the Veterans' Entitlements Act 1986 (the VEA) for the purposes of the VEA and the Military Rehabilitation and Compensation Act 2004 (the MRCA).  Part XIA of the VEA requires the determination of these instruments outlining the factors connecting particular kinds of injury, disease or death with service such being determined solely on the available sound medical-scientific evidence.

2. This Legislative Instrument:-

  • facilitates claimants in making, and the Repatriation Commission and the Military Rehabilitation and Compensation Commission in assessing, claims under the VEA and the MRCA respectively, by specifying the circumstances in which medical treatment and compensation can be extended to eligible persons who have albinism;
  • facilitates the review of such decisions by the Veterans' Review Board and the Administrative Appeals Tribunal;
  • outlines the factors which the current sound medical-scientific evidence indicates must exist before it can be said that, on the balance of probabilities, albinism is connected with the circumstances of eligible service rendered by a person, as set out in clause 5 of the Explanatory Statement;
  • replaces Instrument No. 20 of 2015; and
  • reflects developments in the available sound medical-scientific evidence concerning albinism which have occurred since that earlier instrument was determined. 

3. The Instrument is assessed as being a technical instrument which improves the medico-scientific quality of outcomes under the VEA and the MRCA. 

Human Rights Implications

4. This Legislative Instrument does not derogate from any human rights. It promotes the human rights of veterans, current and former Defence Force members as well as other persons such as their dependents, including:

  • the right to social security (Art 9, International Covenant on Economic, Social and Cultural Rights; Art 26, Convention on the Rights of the Child and Art 28, Convention on the Rights of Persons with Disabilities) by helping to ensure that the qualifying conditions for the benefit are 'reasonable, proportionate and transparent'[1];
  • the right to an adequate standard of living (Art 11, ICESCR; Art 27, CRC and Art 28, CRPD) by facilitating the assessment and determination of social security benefits;
  • the right to the enjoyment of the highest attainable standard of physical and mental health (Art 12, ICESCR and Art 25, CRPD), by facilitating the assessment and determination of compensation and benefits in relation to the treatment and rehabilitation of veterans and Defence Force members;
  • the rights of persons with disabilities by facilitating the determination of claims relating to treatment and rehabilitation (Art 26, CRPD); and
  • ensuring that those rights "will be exercised without discrimination of any kind as to race, colour, sex, language, religion, political or other opinion, national or social origin, property, birth or other status" (Art 2, ICESCR).

Conclusion

This Legislative Instrument is compatible with human rights as it does not derogate from and promotes a number of human rights.

 

Repatriation Medical Authority

 

 

 

 

 

 

[1] In General Comment No. 19 (The right to social security), the Committee on Economic, Social and Cultural Rights said (at paragraph 24) this to be one of the elements of ensuring accessibility to social security.

Overview

The Statement of Principles concerning albinism (Balance of Probabilities) (No. 32 of 2023) was enacted to address the gap in the legislative framework regarding the connection between albinism and military service. This instrument, established under the Veterans' Entitlements Act 1986 and the Military Rehabilitation and Compensation Act 2004, aims to clarify the circumstances in which albinism can be related to eligible military service, thereby facilitating the assessment and determination of claims for compensation and medical treatment. The Repatriation Medical Authority, responsible for determining this instrument, has concluded that on the balance of probabilities, albinism can be related to certain kinds of military service based on the latest sound medical-scientific evidence available. This legislative instrument replaces the previously repealed Statement of Principles No. 20 of 2015, reflecting advancements in medical-scientific understanding of albinism. The instrument facilitates claims under both the Veterans' Entitlements Act and the Military Rehabilitation and Compensation Act, ensuring that the qualifying conditions for benefits are reasonable, proportionate, and transparent, thereby promoting human rights, including the right to social security and the right to an adequate standard of living for veterans, service personnel, and their dependants.

Scope and Application

The Statement of Principles concerning albinism (Balance of Probabilities) (No. 32 of 2023) applies to claims under the Veterans' Entitlements Act 1986 and the Military Rehabilitation and Compensation Act 2004. It is relevant to individuals who have served in eligible war service, defence service, or peacetime service, and who have albinism or have died from albinism. The Statement of Principles is intended to assist in determining whether there is a connection between the claimant's service and their albinism or death from albinism, based on the balance of probabilities and the available sound medical-scientific evidence. This instrument has national jurisdiction as it pertains to federal legislation enacted by the Commonwealth of Australia. It does not specify any exclusions, exemptions, or thresholds but rather sets out the necessary factors for establishing a probable connection between service and albinism. The application of this Statement of Principles may be further detailed or refined through subordinate instruments, which would provide additional clarification or procedural guidance in line with the main Act.

Key Provisions

The Statement of Principles concerning albinism (Balance of Probabilities) (No. 32 of 2023) sets out the circumstances in which albinism or death from albinism may be considered connected to certain kinds of service under the Veterans' Entitlements Act 1986 (VEA) and the Military Rehabilitation and Compensation Act 2004 (MRCA). Section 5 of the Statement of Principles outlines the specific factors that must be present and related to eligible war service, defence service, and peacetime service before it can be said, on the balance of probabilities, that albinism or death from albinism is connected with the service rendered by a person. This instrument replaces the previous Statement of Principles No. 20 of 2015 and incorporates updated medical-scientific evidence. The Statement imposes specific obligations on claimants, the Repatriation Commission, and the Military Rehabilitation and Compensation Commission. Claimants must provide evidence that aligns with the factors specified in the Statement to substantiate their claims related to albinism. The Repatriation Commission and the Military Rehabilitation and Compensation Commission are required to assess these claims based on the evidence provided and the criteria outlined in the Statement of Principles. The Veterans' Review Board and the Administrative Appeals Tribunal are also tasked with reviewing decisions made under the VEA and MRCA, respectively. Breaches of the provisions in the Statement of Principles do not constitute criminal offences but may result in civil consequences. For instance, if claimants provide false information or evidence to substantiate their claims, this could lead to refusal or withdrawal of benefits. Additionally, if the Repatriation Commission or the Military Rehabilitation and Compensation Commission fails to properly assess claims in accordance with the Statement of Principles, this could result in judicial review or other administrative remedies. The maximum penalties are not explicitly stated in the Statement of Principles, but they would be in line with the penalties applicable under the VEA and MRCA for similar breaches.

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Sourced from the Federal Register of Legislation at 26 August 2026. For the latest information on Australian Government law please go to https://www.legislation.gov.au.