DECLARATION UNDER SUBSECTION 196B(6)
OF THE VETERANS’ ENTITLEMENTS ACT 1986
The Repatriation Medical Authority (the Authority), under subsection 196B(6) of the Veterans’ Entitlements Act 1986 (the Act), makes the following declaration in respect of the investigation concerning x-linked myopathy with excessive autophagy. The Notice of Investigation was published in the Government Notices Gazette of 4 November 2014.
X-linked myopathy with excessive autophagy is a genetic disorder of lysosomal function, heritable as an x-linked recessive trait, characterised by autophagic vacuolar myopathy, onset during childhood and slowly progressive atrophy and weakness of proximal skeletal muscles without cardiac or central nervous system involvement.
Having considered and evaluated the sound medical-scientific evidence the Authority is of the view that as there are neither known factors affecting the clinical onset or clinical worsening of x-linked myopathy with excessive autophagy, nor any effective clinical management, the absence of which might aggravate it, that disease is not related to service rendered by a person as provided for in subsection 196B(14) of the Act.
The Authority declares that it is of the view that there is no sound medical-scientific evidence on which it can rely to determine a Statement of Principles in respect of x-linked myopathy with excessive autophagy either under subsection 196B(2) or (3) of the Act and it does not propose to make a Statement of Principles for that disease.
The Common Seal of the )
Repatriation Medical Authority )
was affixed at the direction of: )
PROFESSOR NICHOLAS SAUNDERS AO
CHAIRPERSON 27 / 02 /2015